Vote for Your Favorite Photo at DravetPhotoDiary.com to Support the Epilepsy Foundation and the Dravet Syndrome Foundation

06/29/2021


To celebrate the increased functionality that can come with effective treatments for Dravet syndrome, families and individuals living with the condition have been sharing photos of their family life on DravetPhotoDiary.com

For every "like" or share of a photo the makers of fenfluramine (Fintepla; Zogenix, Emeryville, CA), recently approved for the treatment of Dravet syndrome, will proudly donate $25 to up to a total of $50,000 to the Dravet Syndrome Foundation and the Epilepsy Foundation. In addition, the family whose photo earns the highest number of likes will win an outdoor photo shoot with a local professional photographer and runners-up will receive iPads. 

“We are constantly inspired by the Dravet community and members’ support for one another. These families have taught us the importance of capturing everyday moments that can occur when seizures do not. We feel these moments are worth recognizing,” said Ashish Sagrolikar, Chief Commercial Officer at Zogenix, Inc. “At Zogenix, we are committed to working alongside the Dravet syndrome and larger epilepsy community to celebrate more everyday moments, and we hope that the FINTEPLA Photo Diary will inspire others to do the same.”

“With my daughter’s seizures more controlled, we’re capturing even more moments as a family,” said Bethany Goering, a caregiver whose 12-year-old daughter has Dravet syndrome. “The Fintepla Photo Diary campaign and contest is an opportunity for us to share the hope that we have in between seizures. We’re excited that our participation will support advocacy groups helping others with Dravet syndrome.”
 

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