MENU

06.16.20

National Headache Foundation Survey Shows People With Migraine Feel Misunderstood

  • KEYWORDS:
  • Cluster headache
  • Headache
  • Migraine

A National Headache Foundation migraine survey featuring experiences of individuals with migraine showed that 65% of individuals with migraine currently use triptans as an acute treatment. Most also seek relief across many treatment categories ranging from prescription drugs to over-the-counter pain killers to holistic or alternative medicine. Despite treating their migraines with a variety of therapies, less than 29% of responders report feeling that their migraine is under control. 

Almost all responders felt misunderstood and feared they were a burden to family, friends, and colleagues. 

•    93% of individuals agreed that those who don't suffer from migraine don't understand the severity of the disease 
•    54% of individuals report feeling like a burden to family, friends and co-workers because of their disease 
•    53% say they modified career plans and aspirations because of the impact of migraine

The survey also conveyed the emotional and mental burden of migraines. Over 77% of responders said they were not able to do the things they wanted to because of migraine attacks. Responders reported the following due to a migraine attack at least once a week:

•    42% were unable to exercise or participate in physical activity 
•    37% feel less productive at work or school 
•    28% feel less able to take care of their children 
•    25% avoid sexual intimacy

Due to side effects such as brain fog, fatigue and sleepiness, on average 46% of the responders between the ages of 18 to 59 feel anxious upon taking treatment. In addition, 47% report that treatment side effects have interfered with their ability to go to school or work.

"Migraine disease is so much more than a headache. Due to the COVID-19 pandemic that has impacted our world, stress and anxiety, which are major triggers for people with migraine, are at an all-time high. We must strive to understand and educate about the impact of this disease on not only physical well-being; but also, emotional and mental health," said Mary Franklin, executive director of National Headache Foundation. "Every person living with migraine has a different experience and we want all to feel confident in their treatment choices; but also know that there are others who understand the real impact of the disease." 
 

Galcanezumab Reduces Episodic and Chronic Migraine Pain Burden

Previous News Article

Cenobamate Reduces Frequency of Uncontrolled Partial-Onset (Focal) Seizures

Next News Article
This Month's Issue
Poststroke Telerehabilitation

Claire Smyth, BSc; David Roberts, BSc; and Kenneth Monaghan, PhD

Teleneuro-ophthalmology

Melissa W. Ko, MD; Kevin E. Lai, MD; and Devin D. Mackay, MD